This week we say goodbye to our Early intervention therapists. Those that have been with us from the time Amanda was a few months old, through good times and bad. I knew that this day would be here sooner rather then later, but I was unaware of how truly sad I would be to see everyone go. They have been thru everything with me and my Peanut...her constipation, pnuemonia, vision issues, surgeries....add in all my neurotic worries about walking, talking, eating, you name it, I have vented/stressed to my therapists. They not only have given my daughter the best therapy sessions pushing her to her greastest potential, they have been my ear that I could bend. I can tell them my deepest worries without judgement on their part. They have seen it all. Willing and able to give advice or comiserate (spelling?). What next? How well will the next set of therapists stack up to such amazing providers of OT, PT, Speech, Developmental, vision and nutrition...like we have been so lucky to have had help us. Well, we will let you know...as we start school on Monday next week...I'll fill you in.
On a final note, if my "TEAM" is reading this, you are all amazing people, god sent, truly gifted talented caregivers, and any child who has you as their provider is blessed.
Though words are not enough, to express out gratitude, THANK YOU!
Sunday, April 22, 2007
Sunday, February 18, 2007
School decisions...Good news
So here’s the update:
I got to my meeting 20 minutes early, as parking might be tricky with all the snow we’ve had lately, only to get a spot right in front of the school…however, I soon learned that they did not have the handicapped entrance on this side it was clear on the other side of the building…I gave up and shlepped my double stroller, complete with infant seat (little brother Alistair, 7 weeks, came with) and miss Amanda up the steps only to then spend four very long hours (the meeting was only slated to be two hours) with testing for Amanda and discussions, before we finally left.
I was not too sure where we stood when we left the meeting, I just knew that I had made sure they knew that I wanted Amanda to attend the private school best equipped to deal with her vision issues, as they are best equipped to give her the intensive vision training she needs. Which ironically, the vision person agreed she needed, but felt it was a toss up whether they could provide the services of if we needed to go to the private location. I made my points (that unless they could provide me with an aide to be with my child for every minute she is in school who is trained in vision, that she needs to be at the private school ). I happen to know that there is no such thing and if I can demonstrate that they can’t provide the services she needs, then they HAVE to send her to private school.
Her vision at best correction is 20/80…without correction she is 20/400…she essentially is low vision, not blind, but because her vision changes based on which glasses she wears, she needs help learning to see and adapt herself to her vision. But I digress…Basically after the meeting, I thought there was no way I would get her into the program because the public schools loses money if they send her there. First of all they kept telling me how she needs to be in a room with typical peers, and they felt the school for the blind would only old her back. Instead they were recommending a classroom of reverse inclusion, where the five kids there now who are all older then my daughter, all have cognitive delays, and no vision issues. Basically that not only would I be holding her back with her vision, but now I would be limiting her cognitively as well. I know my child is not a rocket scientist, but come on!! What a lame argument!
To make matters worse, at the meeting they were recommending that I send my child to a VERY high risk neighborhood, if the police see a white chick there, they stop you and tell you you need to leave (I am not kidding!! My PT had it happen to her as did my OT),...even my Black nanny wouldn't go to to that neighborhood! So I came home discouraged and trying to figure out if I could come up with the tuition money myself for private school.
Adding to this, there is a sheet you have to sign that you attended the meeting, and the diagnosis for which she requires services based on their evals…they wanted me to sign it or they can’t prepare for the IEP. I did what you said, I read the darn thing, took my time (15 minutes) and found a MISTAKE!!! They put that she ahs a vision impairment, and developmental delay as reasons for service, which is accurate. However, when listing the services, they put developmental as the main header with PT, OT, ST, Mobility training and vision was last all as supportive services…WRONG!!!! I said so too. The vision person agreed that vision should be right next to developmental as the main services with everything else as supportive. They made the correction, albeit begrudgingly. Then I signed it.
Friday afternoon, less then 24 hours later, a record for pgh public from what my EI therapists have told me, I get a call from the public school- they agreed to send Amanda to the private school! They will pickup the tab!!!! Not only that, but they called the school to see if they have room...they had one spot left, which they gave to Amanda ( I had called over there after my meeting on thursday to the director of the program, to give her a heads up that she might be getting a call from the public school, but that I wasn't too sure, just in case). Turns out the director saved the spot for Amanda, as the spots are available on a first come first serve basis, since I called the day before I beat another family to it!!!
OMG, I cannot tell you how relieved I am! I can relax about her vision issues they will address them to the umpth degree...meaning later she hopefully will need less services. Besides, they have this great policy if they lose a lense, the school will replace it for me! Won't my insurance company be happy.
I don't have to tell you 'cuz you know me pretty well to know that I stuck to my guns, refused to take no for an answer, and guess what it worked! Some people may say that I am too headstrong, and maybe to a fault, but here it worked to my advantage. It could have easily backfired, but I guess they saw I would only be a thorn in their side until I got what I wanted (truthfully I made a really good case)..what ever it was....
WHEW!!!!
We have our IEP meeting scheduled for March 8…we were given the follwing recommendations at the transition meeting for services weekly:
2 hours direct + 30 min Consultatory PT
1 hour direct OT
1 hour Direct Speech
Here's hoping for more great news after her IEP in march...ttyl
I got to my meeting 20 minutes early, as parking might be tricky with all the snow we’ve had lately, only to get a spot right in front of the school…however, I soon learned that they did not have the handicapped entrance on this side it was clear on the other side of the building…I gave up and shlepped my double stroller, complete with infant seat (little brother Alistair, 7 weeks, came with) and miss Amanda up the steps only to then spend four very long hours (the meeting was only slated to be two hours) with testing for Amanda and discussions, before we finally left.
I was not too sure where we stood when we left the meeting, I just knew that I had made sure they knew that I wanted Amanda to attend the private school best equipped to deal with her vision issues, as they are best equipped to give her the intensive vision training she needs. Which ironically, the vision person agreed she needed, but felt it was a toss up whether they could provide the services of if we needed to go to the private location. I made my points (that unless they could provide me with an aide to be with my child for every minute she is in school who is trained in vision, that she needs to be at the private school ). I happen to know that there is no such thing and if I can demonstrate that they can’t provide the services she needs, then they HAVE to send her to private school.
Her vision at best correction is 20/80…without correction she is 20/400…she essentially is low vision, not blind, but because her vision changes based on which glasses she wears, she needs help learning to see and adapt herself to her vision. But I digress…Basically after the meeting, I thought there was no way I would get her into the program because the public schools loses money if they send her there. First of all they kept telling me how she needs to be in a room with typical peers, and they felt the school for the blind would only old her back. Instead they were recommending a classroom of reverse inclusion, where the five kids there now who are all older then my daughter, all have cognitive delays, and no vision issues. Basically that not only would I be holding her back with her vision, but now I would be limiting her cognitively as well. I know my child is not a rocket scientist, but come on!! What a lame argument!
To make matters worse, at the meeting they were recommending that I send my child to a VERY high risk neighborhood, if the police see a white chick there, they stop you and tell you you need to leave (I am not kidding!! My PT had it happen to her as did my OT),...even my Black nanny wouldn't go to to that neighborhood! So I came home discouraged and trying to figure out if I could come up with the tuition money myself for private school.
Adding to this, there is a sheet you have to sign that you attended the meeting, and the diagnosis for which she requires services based on their evals…they wanted me to sign it or they can’t prepare for the IEP. I did what you said, I read the darn thing, took my time (15 minutes) and found a MISTAKE!!! They put that she ahs a vision impairment, and developmental delay as reasons for service, which is accurate. However, when listing the services, they put developmental as the main header with PT, OT, ST, Mobility training and vision was last all as supportive services…WRONG!!!! I said so too. The vision person agreed that vision should be right next to developmental as the main services with everything else as supportive. They made the correction, albeit begrudgingly. Then I signed it.
Friday afternoon, less then 24 hours later, a record for pgh public from what my EI therapists have told me, I get a call from the public school- they agreed to send Amanda to the private school! They will pickup the tab!!!! Not only that, but they called the school to see if they have room...they had one spot left, which they gave to Amanda ( I had called over there after my meeting on thursday to the director of the program, to give her a heads up that she might be getting a call from the public school, but that I wasn't too sure, just in case). Turns out the director saved the spot for Amanda, as the spots are available on a first come first serve basis, since I called the day before I beat another family to it!!!
OMG, I cannot tell you how relieved I am! I can relax about her vision issues they will address them to the umpth degree...meaning later she hopefully will need less services. Besides, they have this great policy if they lose a lense, the school will replace it for me! Won't my insurance company be happy.
I don't have to tell you 'cuz you know me pretty well to know that I stuck to my guns, refused to take no for an answer, and guess what it worked! Some people may say that I am too headstrong, and maybe to a fault, but here it worked to my advantage. It could have easily backfired, but I guess they saw I would only be a thorn in their side until I got what I wanted (truthfully I made a really good case)..what ever it was....
WHEW!!!!
We have our IEP meeting scheduled for March 8…we were given the follwing recommendations at the transition meeting for services weekly:
2 hours direct + 30 min Consultatory PT
1 hour direct OT
1 hour Direct Speech
Here's hoping for more great news after her IEP in march...ttyl
Wednesday, February 07, 2007
Just Another Day
Just another day at home with the kids...Alistair is getting pudgier by the minute...fitting in quite well with the older kids and their baby photos. 
Alistair is ready for his meat and potatoes as you can see... he is 14 lbs 12 oz now, at just 7 weeks of age (breastmilk only)!
Big sister, Miss Amanda, loves her baby now. She asks to hold him, by signing, and will "love love her baby" by holdinghim tightly and rocking side to side, before trying to bite him (i think its her kisses) and then pushing him away. She's come a long way!
Aaaaah.....brotherly love...James decided to help Dad out the other noght while I was out at school, by giving Alistair his bottle....too bad he can't be this angel like all the time...all helpful and not makeing trouble. I guess it makes these moments all the more special.I've been busy with my head buried in chemistry books and genetics for my last two pre reqs before I start my program. Then I have had to deal with Strep that has been making its rounds in our house since the baby was born. It is a vicious scycle of drug, strep, drug strep...I am so hoping we are done with it now...not a fun circle to be stuck in.
Amanda has had one eval for her transition for PT today, we got the recommendation fo two hours direct Pt and half an hour consulting...I think that's pretty good. Anyone out there have any experiance with IEP's?
I'll try to post more frequently, but please don't hold your breath, I don't want that on my concisous!
Monday, January 29, 2007
Lawsuit to ensure inclusion for students with DS
NDSS Partners with New Jersey Families and Affiliates in Lawsuit to Ensure Inclusion for Students with Down Syndrome
New York, January 23, 2007 The National Down Syndrome Society (NDSS) has been named an organizational plaintiff in the class action lawsuit Grieco et. al v. New Jersey Department of Education et. al. The lawsuit alleges that New Jersey is in violation of IDEA requirements that a student be placed in the least restrictive environment appropriate for individual students. The complaint also alleges discrimination in violation of the Americans with Disabilities Act (ADA).
In addition to NDSS, the plaintiffs in the case include three children with Down syndrome, their families, TASH, New Jersey TASH, The Family Alliance to Stop Abuse and Neglect, and the National Down Syndrome Congress. The lawsuit alleges that students with Down syndrome have been denied an inclusive education, denied additional hours of inclusion and not received appropriate supplementary aids and services to support inclusive education. Andrew Hamelsky, an attorney at White and Williams LLP in New Jersey and Barbara E. Ransom, with The Public Interest Law Center of Philadelphia, are co-counsel on the lawsuit.
NDSS joined the lawsuit to provide support to the families involved with the hope of promoting systems change in New Jersey and opening more doors to students that want to be educated with their non-disabled peers across the country. NDSS Affiliates have traditionally been, and remain, uniquely positioned to provide a voice for students with Down syndrome in the governmental and judicial arenas regarding education policy.
Contact: Ricki SabiaNDSS National Policy Center800-743-5657rsabia@ndss.org
New York, January 23, 2007 The National Down Syndrome Society (NDSS) has been named an organizational plaintiff in the class action lawsuit Grieco et. al v. New Jersey Department of Education et. al. The lawsuit alleges that New Jersey is in violation of IDEA requirements that a student be placed in the least restrictive environment appropriate for individual students. The complaint also alleges discrimination in violation of the Americans with Disabilities Act (ADA).
In addition to NDSS, the plaintiffs in the case include three children with Down syndrome, their families, TASH, New Jersey TASH, The Family Alliance to Stop Abuse and Neglect, and the National Down Syndrome Congress. The lawsuit alleges that students with Down syndrome have been denied an inclusive education, denied additional hours of inclusion and not received appropriate supplementary aids and services to support inclusive education. Andrew Hamelsky, an attorney at White and Williams LLP in New Jersey and Barbara E. Ransom, with The Public Interest Law Center of Philadelphia, are co-counsel on the lawsuit.
NDSS joined the lawsuit to provide support to the families involved with the hope of promoting systems change in New Jersey and opening more doors to students that want to be educated with their non-disabled peers across the country. NDSS Affiliates have traditionally been, and remain, uniquely positioned to provide a voice for students with Down syndrome in the governmental and judicial arenas regarding education policy.
Contact: Ricki SabiaNDSS National Policy Center800-743-5657rsabia@ndss.org
Monday, January 22, 2007
Tough Love
No injuries were acquired during this portrait session...As you can see Amanda loves her new baby brother. In fact she helps him out with his appearance by giving him facelifts, as she is demonstrating in the photo above. Really, I promise she was holding Alistair so nicely 30 seconds before!
Here's the Foursome all together, leave it to my older son to play around, ruining a perfectly nice picture!
Here's my Pudgy Wudgy Prince...We are working on our thrid chin, as you can clearly see.
Been busy, started back to school this past week, Tryingto find the time to study, which is very hard. Especially with my Hubby out of town the last couple of days. We managed, the four kids and I to behave ourselves, and not spend too much money. I took them to see the new Ben stiller movie, they enjoyed it tremendously.
Thursday, January 18, 2007
My lovely son, the Hollywood star
Here's a great, inspiring article, just going to prove that the sky's the limit! http://www.dailymail.co.uk/pages/live/femail/article.html?in_article_id=425534&in_page_id=1879
Sorry about the infrequent posts, I've been a little busy latley between school and the new baby, Alistair. I don't know if I 'm coming or going anymore.
I'll try to post a better update as soon as I can.
Sorry about the infrequent posts, I've been a little busy latley between school and the new baby, Alistair. I don't know if I 'm coming or going anymore.
I'll try to post a better update as soon as I can.
Monday, December 25, 2006
Hello, my name is......
We are pleased to announce the arrival of Alistair Park who joins his siblings Eli, James and Amanda. We look forward to sharing the adventures of the kiddos with all of you.
Here's wishing everyone a wonderful Holiday Season and a Happy New Year!
Wednesday, December 20, 2006
It's A BOY!
We had our fourth child, a boy, on saterday December 16, 2006 at 11 am on the button. After 11 hours of labor and pushing for ten mintues...our 9 lb 12 oz 22 in long buster arrived!
My OB made it, and spent the entire labor with Brian and I, hanging out and keeping us company. He did me the favor of coming in to deliver me, even though he was not on call that night...brian and I are forever grateful!
The other three are adjusting well, I think. Time will tell definitively though.
Baby boy, will get his name on Saterday, at his circumsicion, and naming ceremony...until then you'll have to wait!
He has his nights and days mixed up, as he had when he was in utero been active between 6 pm and 5 am..he is keeping similar hours here with us. I am hoping he will striagten himself out soon, as I am exhuasted.
Will try to keep up for the next few weeks before my next classes start...
wishing everyone happy holidays.....
check out the pictures of the new bundle in brians blog at down syndrome life...
ttyl, me
My OB made it, and spent the entire labor with Brian and I, hanging out and keeping us company. He did me the favor of coming in to deliver me, even though he was not on call that night...brian and I are forever grateful!
The other three are adjusting well, I think. Time will tell definitively though.
Baby boy, will get his name on Saterday, at his circumsicion, and naming ceremony...until then you'll have to wait!
He has his nights and days mixed up, as he had when he was in utero been active between 6 pm and 5 am..he is keeping similar hours here with us. I am hoping he will striagten himself out soon, as I am exhuasted.
Will try to keep up for the next few weeks before my next classes start...
wishing everyone happy holidays.....
check out the pictures of the new bundle in brians blog at down syndrome life...
ttyl, me
Sunday, December 03, 2006
Congratulations....
.....you have been accepted to the Physician Assistant masters program, class of 2009!
These were the words at the top of the letter I recieved from the only program I applied to.
I am so relieved, as I went into my interview 9 months pregnant, big as ever, in a maternity buisiness suit that cost me a small fortune, wearing pantyhose (those of you who have been pregnant know how much of a sacrafice THAT was), and heels! Thank god they were able to see past my pregnancy, although I wasn't too sure they would, as they kept asking questions about it.
Three days after the interview, I got a call at eight o'clock at night from the program director giving me the official news. Which was then followed up by the very official envelope that arrived a week later. Although, it is conditional, I have two more prerequisite courses to finish next term in order for it to be really certain. Oh, did I mention the hefty deposit too? Yes, they want my money starting now. In large quantities....good thing I'll be making a good living in three years, I need to pay off the debt, plus the interest. any million dollar qget rich quick ideas?
So, I had been thinking that the interview was the hard part of the whole process, but now I'm thinking that the program may be. I have heard it is very difficult, but I am up to the challenge. One thing that my special little angel has taught me is to never give up. No matter how hard something may be, be persistent and your efforts will be rewarded. So far so good, now just in case keep your fingers crossed!
The program starts up this fall, so I need to start looking around to childcare arrangements and finalize schooling schedules for my other three kiddos. Life will be busy this year, and for the next couple of years, but we can manage.
I want to express my greatest thanks and appreciation to all my family who have been so incredibly supportive during the whole process thus far. I know I have not been the easiest person to be around, what with all the hormones (I can still blame the hormones, at least for the next week or so). But I truly appreciate all you have done, given up and worked for.
I also want to thank those friends who have also helped me out and been there for me in a pinch and in times of total freak outs! Thank you all for your support, and I promise one day you will see the rewards of your efforts...but not for a couple more years. So hang in there,
Yes, I am still aROUND, no baby yet, but getting there. Contractions, back aches, dilations all the fun end of the term stuff is going on and I am just anxiously awaiting that moment. So, I'll keep you posted on that part of life too.
These were the words at the top of the letter I recieved from the only program I applied to.
I am so relieved, as I went into my interview 9 months pregnant, big as ever, in a maternity buisiness suit that cost me a small fortune, wearing pantyhose (those of you who have been pregnant know how much of a sacrafice THAT was), and heels! Thank god they were able to see past my pregnancy, although I wasn't too sure they would, as they kept asking questions about it.
Three days after the interview, I got a call at eight o'clock at night from the program director giving me the official news. Which was then followed up by the very official envelope that arrived a week later. Although, it is conditional, I have two more prerequisite courses to finish next term in order for it to be really certain. Oh, did I mention the hefty deposit too? Yes, they want my money starting now. In large quantities....good thing I'll be making a good living in three years, I need to pay off the debt, plus the interest. any million dollar qget rich quick ideas?
So, I had been thinking that the interview was the hard part of the whole process, but now I'm thinking that the program may be. I have heard it is very difficult, but I am up to the challenge. One thing that my special little angel has taught me is to never give up. No matter how hard something may be, be persistent and your efforts will be rewarded. So far so good, now just in case keep your fingers crossed!
The program starts up this fall, so I need to start looking around to childcare arrangements and finalize schooling schedules for my other three kiddos. Life will be busy this year, and for the next couple of years, but we can manage.
I want to express my greatest thanks and appreciation to all my family who have been so incredibly supportive during the whole process thus far. I know I have not been the easiest person to be around, what with all the hormones (I can still blame the hormones, at least for the next week or so). But I truly appreciate all you have done, given up and worked for.
I also want to thank those friends who have also helped me out and been there for me in a pinch and in times of total freak outs! Thank you all for your support, and I promise one day you will see the rewards of your efforts...but not for a couple more years. So hang in there,
Yes, I am still aROUND, no baby yet, but getting there. Contractions, back aches, dilations all the fun end of the term stuff is going on and I am just anxiously awaiting that moment. So, I'll keep you posted on that part of life too.
Tuesday, November 28, 2006
I'm not a saint, just a parent
This is a great article that someone sent to me from England. Check it out at:
http://www.timesonline.co.uk/article/0,,8123-2448700_1,00.html
http://www.timesonline.co.uk/article/0,,8123-2448700_1,00.html
Sunday, October 22, 2006
Still aROUND
It has been a while since I last posted. I have been so busy with school and chasing after the kids and trying to get myself situated for the impending arrival. As you can see (I took a picture of my big ol belly ) I am nice and round, with lots of elbow space....but getting cramped. Lately I have been having contractions up the wazzu, with increased activity levels. Could it possibly be that I am doing too much? Lets see I have class three nights a week, three kids, therapy out patient at a local facility three days a week, in home EI services five days a week, usually twice a day....not to mention the house with chores and erands (food has been scarce in my house lately, cuz I have no time or desire to go to the grocery), homework with my first grader, ot to mention my own homework....nah, I could squeeze in at least three more activities a week, don't you think. (If you cannot detect the sarcasm, you haven't read between the lines well enough). Truth be told I do this to myself, mostly because I know when Peanut turns three in April, she will lose all but three days of therapy, and I will have to find new ways to get her the services she needs. So I have pretty much been grinning and bearing it the last month...but really I am so tired of it...I was so glad that one of her therapists went on maternity leave, becuase it gives me one more hour a week to do whatever it is I do. The fact that I am totally pregnant and hormonal has nothing to do with it....it's everyone else, right? I don't mean to whine, sorry, it's been one of those nights.
Anyhow....Miss Peanut has started pulling up to stand at every surface, discovering picture frames, statues and other fun decorative items that have until recently remaining out of sight out of mind. She is cruising at many surfaces now too...now if we could just get her to stand on her own two feet (get it, ie without holding onto anything?)
We had gone to the Cleveland Clinic Cole Eye Institute back in August for the first time and have been back and forth since...they have done amazing things for Peanut and her vision. Including getting the insurance to pay for her lenses. Too bad we are fighting with them to cover the lense fittings now (I am not kidding, they had been paying for everything but the lenses, now they are fighting us on this...CRAZY!) Since we got her new contact lenses, Peanut began to explore her environment more and began to transition more comfortably in and out of different positions. What a huge difference we have seen since. Every week, it seems she is doing something more, building on her skills. I am kicking myself for not going into Cleveland sooner...live and learn, better late then never I suppose. We have also added outpatient services two days of PT and one day of speech...she seems to be responding to the PT, but the speech is slow..we'll see.
We found Signing times, and Peanut LOVES it! We just need to order it and stop playing the freebees on the website (Yes I am that lazy anymore). It took weeks for me to finally order my suit from online...it's just so time consuming and such a headache.
My oldest, Miss Elle is having fun in first grade, and loving homework...where does she come from....James is a terror at home and the perfect angel at school. He attempted to self medicate the other day. He had a boo-boo on his foot that at night his daddy puts cream on it with a bandaid. Well, James decided he couldn't wait. While a therapist was here, and I was otherwiase occupied he took the desk chair, added two stools and climbed up into my medicine cabinet to get his cream. Luckily I realized how quiet it had become and went to check on him....We have since removed all medications from the cabinet.
I have my interview for the Physician Assistant program coming up in a few weeks. I had to order a maternity business skirt suit for it....a small fortune for something I will wear once being that I will be 9 months pregnant when I do wear it. I told Brian I would wear it every day until I deliver so we can maybe get our moneys worth out of it. (Everyday for two to three weeks, so that's about $ 25.00 a day). It's actually really nice, and I ma thinking about taking in afterward to wear it as non maternity (it's as classic, plain black button down as you can get, wiothout looking like you're wearing a tent, as many of the suits and look when you are pregnant)
Brian has had his own run ins with the medical profession this last month and is making me crazy! When I start my infectious disease class I better hide my books or he might think he has some weird disease......he's been under a lot of stress what with number fours impending arrival, the three kids home with him three nights a week and his wife having to deal with ignorant people....He has been stressed, and I guess his out let is medicine I hope I havent worn off too much, there's only room for one Medical professional in this house, ME! (selfish, I know but, hey we all have our own things we like to be good at on our own, Right?
So that's what's been cooking here, busy busy busy.....I'll try to post again soon, but can't promise when, as I have a C in chemistry and need to spend more time studying.....ttyl.
Sunday, July 09, 2006
Life...
I have been so swamped these last few months. I am pregnant with our fourth...had a tough first few months what with morning sickness (should be called 24 hour sickness). School has been a bit more challenging since I am tired and or nauseated. But still going strong in the school department. I'm studing for a final tonight, but thought I post a quick update. Finally looking kinda pregnant, people have cut back on asking me if I've been eating too many donuts. Although I must forwarn you ladys...starbucks Caramel Frappachinos, even without the whipped cream, are VERY FATTENING. I could not keep anything down except the fraps, I gained 7 pounds last month!!!! I'm on a diet now....no more frappachinos for this gal!
Peanut had her second set of tubes put in as she failed her yearly hearing screen. We will repeat the screen in a few weeks. In the meantime she has gotten an ear infection, which she hadn't had one in almost a year. We went for our speech eval, and they did count some of the signs, the ones that they got to see. At least it was better then before. Plus we got speech outpateint two times a week...along with PT two times a week...my Peanut has got work to do!
Rest of the family is well, sick of mac and cheese and pizza, but otherwise in good health and good spirits. Here's to keeping ya'll posted,
TTYL, me
Peanut had her second set of tubes put in as she failed her yearly hearing screen. We will repeat the screen in a few weeks. In the meantime she has gotten an ear infection, which she hadn't had one in almost a year. We went for our speech eval, and they did count some of the signs, the ones that they got to see. At least it was better then before. Plus we got speech outpateint two times a week...along with PT two times a week...my Peanut has got work to do!
Rest of the family is well, sick of mac and cheese and pizza, but otherwise in good health and good spirits. Here's to keeping ya'll posted,
TTYL, me
Thursday, May 18, 2006
Annual Evals....aaaargh!
I can't tell you how much I dislike annual evaluations. You know the ones we have to endure to maintain services for our kiddos. The ones thatthey use these horrible tests like the Battele to measure where our children stand developmentally. I cannot begin to tell you how maddening, and upseting they are to me.
We had Peanuts annual eval today. I always prepare myself for these reviews as they are so biased. If a child "ceilings out" ie gets two zeros in a row, they cannot be scored after that in that topic. The thing is, is that many children skip a couple of these levels yet can do the next three. Doesn't matter, because they have "ceiliinged out" so it doesn't count. Let me tell you about Peanuts eval. I was so excited that she met almost all her goals from last year. Only small handful were not met, only because of linguistics (ie she met them, but because of the way they were worded, she didn't). So many things that last year it seemed as if she'd never get, she did. Like self feeding with pincer grasp. Or moving around her environment independantly to play with her siblings (she butt scoots). Even communicationg her needs or wants with others was met thanks to her using 15 signs (10 spontaneously, and 5 with prompting).
The bummer of all this is that she tested lower then I had expected in many aspects, because she ceilinged out in many of the topics. For example, in verbal communication skills, becuase she doesn't SAY two word sentences, she got down graded; never mind that she signs two word phrases, like me bath, me smart. Also she got downgraded on social emotional because she doesn't SAY Hi to an adult or ASK them to play. Never mind that she hops over and waves and says "EH!" or that she brings a toy over to you and taps you on your leg until you pay attention to her.
So over all she tested at a 18 month level, but with ranges from 8 mos to 18 mos in various levels. Frustrating , irritating, yet somewhat endearing that she had come so far. Maddening that we have so much farther to go. Good news is she did great on cognitive and receptive language, bad news is I have a lot of work to do with her. So I guess I better start hopping....TTYL
We had Peanuts annual eval today. I always prepare myself for these reviews as they are so biased. If a child "ceilings out" ie gets two zeros in a row, they cannot be scored after that in that topic. The thing is, is that many children skip a couple of these levels yet can do the next three. Doesn't matter, because they have "ceiliinged out" so it doesn't count. Let me tell you about Peanuts eval. I was so excited that she met almost all her goals from last year. Only small handful were not met, only because of linguistics (ie she met them, but because of the way they were worded, she didn't). So many things that last year it seemed as if she'd never get, she did. Like self feeding with pincer grasp. Or moving around her environment independantly to play with her siblings (she butt scoots). Even communicationg her needs or wants with others was met thanks to her using 15 signs (10 spontaneously, and 5 with prompting).
The bummer of all this is that she tested lower then I had expected in many aspects, because she ceilinged out in many of the topics. For example, in verbal communication skills, becuase she doesn't SAY two word sentences, she got down graded; never mind that she signs two word phrases, like me bath, me smart. Also she got downgraded on social emotional because she doesn't SAY Hi to an adult or ASK them to play. Never mind that she hops over and waves and says "EH!" or that she brings a toy over to you and taps you on your leg until you pay attention to her.
So over all she tested at a 18 month level, but with ranges from 8 mos to 18 mos in various levels. Frustrating , irritating, yet somewhat endearing that she had come so far. Maddening that we have so much farther to go. Good news is she did great on cognitive and receptive language, bad news is I have a lot of work to do with her. So I guess I better start hopping....TTYL
Thursday, May 11, 2006
Happy Mother's Day
Here's wishing all the hard working, dedicated moms a very happy mother's day. I hope you can take the time to enjoy the small things in life this weekend.
I know I will be enjoying every minute with my family (perhaps wishing for a little time alone?) But enjoying the laughs, giggles, screaming, taunting and oh yes the shrieks of delight. Did I leave anything out?
I got my mothers day gift already...my grades form my first term back in school. I got A's (thank god) What better gift then to know that with three kids, a husband, job and life, I still have it in me!
Wishing everyone a great weekend filled with love, laughter and all those special things you hold dear.
I know I will be enjoying every minute with my family (perhaps wishing for a little time alone?) But enjoying the laughs, giggles, screaming, taunting and oh yes the shrieks of delight. Did I leave anything out?
I got my mothers day gift already...my grades form my first term back in school. I got A's (thank god) What better gift then to know that with three kids, a husband, job and life, I still have it in me!
Wishing everyone a great weekend filled with love, laughter and all those special things you hold dear.
Sunday, April 16, 2006
Close Call
So I was scheduled to go under the knife tomorrow, but I got out of it. About a week ago, my knee, which up until that point had been absolutely KILLING me, stopped. You heard me it stopped hurting. Crazy, right? to go from barely able to walk to walking just fine. God works in weird ways. I still have a split vastus lateralis, which may need to be repaired at any moment, but for now I am out of the woods.
Elle is turing six, and once again, I am behind on the whole party scene. I always think I have more time then I really do. Surprised? As I seem to be so organized in all the rest of my life...well in this one aspect I am not.
Peanut is turning two and boy has she grown up and looks more and more like a big gril. She is really changing, daily. She plays games, and is so the terrible twos, having fits when she doesnt want to do something.
James is ever the boy, getting into mischeif faster then you can say no. He is denise the menace reincarnate. Scary!
I have been busy shadowing physicians and physician assistants trying to learn as much a I can prior to my program. I am so excited, but really nervous about being accepted. Never in my life have I been so anxiety ridden over being accepted into a program. I have always had the eh, if I don;t I don't attitude. Now, being that I have no other choices for locations of programs, I need to be accepted.
Here's to keeping my fingers crossed (perhaps I should practice crossing my toes too).
I am almost done with my first term of pre requisites, and have signed up for more classes over the summer. I will be pretty busy, but I should manage.
Hope everyone has had a good holiday...ta!
Elle is turing six, and once again, I am behind on the whole party scene. I always think I have more time then I really do. Surprised? As I seem to be so organized in all the rest of my life...well in this one aspect I am not.
Peanut is turning two and boy has she grown up and looks more and more like a big gril. She is really changing, daily. She plays games, and is so the terrible twos, having fits when she doesnt want to do something.
James is ever the boy, getting into mischeif faster then you can say no. He is denise the menace reincarnate. Scary!
I have been busy shadowing physicians and physician assistants trying to learn as much a I can prior to my program. I am so excited, but really nervous about being accepted. Never in my life have I been so anxiety ridden over being accepted into a program. I have always had the eh, if I don;t I don't attitude. Now, being that I have no other choices for locations of programs, I need to be accepted.
Here's to keeping my fingers crossed (perhaps I should practice crossing my toes too).
I am almost done with my first term of pre requisites, and have signed up for more classes over the summer. I will be pretty busy, but I should manage.
Hope everyone has had a good holiday...ta!
Thursday, March 09, 2006
Seriously!
Seriously! It has been way too long since the last time I blogged. I have been so busy studying (which I should be doing right now) and trying to keep on top of the game, that blogging has fallen by the way side.
I have been in class for ten weeks now, and I am proud to brag that I have A's in both my clases! Seriously! I can't believe I have A's, with three kids, work and a crazy schedule of therapies etc. It's nice to know I am able to follow through with my goals..now I just have to keep it up.
I have been Ms. Gimp for 5 weeks now, and I have to wait five more before I can have surgery to repair my split Vastus lateralis (a muscle in my thigh). I was on crutches then finally convinced my surgeon to give me a brace, which helps, but I'm still in pain. I am not used to being so stationary that I am having trouble sleeping at night. So it will be more pain for a while now. After surgery I have to be on cturches for six weeks, no driving for a month and rehab three times a week for a while...I guess I have some scheduling conflicts I need to work out. Sounds like fun?! I am worried beyond belief, as Amanda still doesn't wlk on her own, and relys on me carrying her around.
My saving grace is my mom, who lives near by and will be helping us out...she doesn;t really realize how insane my life is, but after a week on my schedule, I think she'll understand.
Peanut is signing up a storm 12 words almost 15. She butt scoots really fast and gets into everything!
James is doing much better in the speech dept, still behind, but making great progress.
MIss Elle is reading! She is figuring out how cool it is to read books and soon I'll have her reading my books and doing my homework! Just kidding!
I have gotten swamped with patients in the last month, having to go into the office ans spending time on the phone. It's nice to make money, only wish sometimes I didn't have to work so hard...don't we all feel like that sometimes?
So that's the news from this end of the planet, busy with life...trying to stay above water. Seriously, life is crazy busy, with mostly good things.
I have been in class for ten weeks now, and I am proud to brag that I have A's in both my clases! Seriously! I can't believe I have A's, with three kids, work and a crazy schedule of therapies etc. It's nice to know I am able to follow through with my goals..now I just have to keep it up.
I have been Ms. Gimp for 5 weeks now, and I have to wait five more before I can have surgery to repair my split Vastus lateralis (a muscle in my thigh). I was on crutches then finally convinced my surgeon to give me a brace, which helps, but I'm still in pain. I am not used to being so stationary that I am having trouble sleeping at night. So it will be more pain for a while now. After surgery I have to be on cturches for six weeks, no driving for a month and rehab three times a week for a while...I guess I have some scheduling conflicts I need to work out. Sounds like fun?! I am worried beyond belief, as Amanda still doesn't wlk on her own, and relys on me carrying her around.
My saving grace is my mom, who lives near by and will be helping us out...she doesn;t really realize how insane my life is, but after a week on my schedule, I think she'll understand.
Peanut is signing up a storm 12 words almost 15. She butt scoots really fast and gets into everything!
James is doing much better in the speech dept, still behind, but making great progress.
MIss Elle is reading! She is figuring out how cool it is to read books and soon I'll have her reading my books and doing my homework! Just kidding!
I have gotten swamped with patients in the last month, having to go into the office ans spending time on the phone. It's nice to make money, only wish sometimes I didn't have to work so hard...don't we all feel like that sometimes?
So that's the news from this end of the planet, busy with life...trying to stay above water. Seriously, life is crazy busy, with mostly good things.
Saturday, February 18, 2006
The Tales of Two Weeks (or is it Three?)
Update:
I have been so busy these last few weeks that time has slipped though my fingers and before I know it I have failed to update all of you once again. So I am taking a few minutes now to tell the tales of the last few weeks.
I have jumped into school and been very busy trying to juggle house, family and school. So far managing pretty well (thanks to my Hubby - BStrong). I managed to get A's on my first two exams...now I just have to keep them up. The battle if half won!
Kids are doing great. Peanut is pulling to stand without quing at the bathtub, gets up on her own everytime! Our PT had her baby, a baby girl ( she is such a doll) so we have a new PT filling in for us until Ms Julie gets back. The only problem is that Peanut knows the differance between the replacement and Julie..and is giving us a hard time and not working very well. OH, well. We will keep trying, but we may be given a bigger run for our money then we had anticipated.
I can't believe Peanut will be two in a couple of months! Where has the time gone?
I have kept our family busy by falling up my stairs and hurting my knee. Yes, I had a momentary lapse in memory as to how to walk UP the steps. I apparently did a ggod job on it, as it took me three weeks to get my butt in to see my orthopaedic surgoen, and when I finally went he tells me I split a muscle in my leg (Vastus Lateralis, it's one of the quadracept muscles). Basically I bought myself a ticket to the OR, but oh, by the way, they have no room on their schedule for almost eight weeks! Diod I mention I can't walk? I'm in pain? I'll just keep taking my Motrin and try not to do too much (Yeah right...mother of three here!?). The funny thing is, is that if g-d forbid it was one of my kids I would not hear of being pushed off for that long. I'd be insisting on surgery ASAP. I however, look at it as if I want to be worked on by the best of the best, I wait. The surgeon IO use is none other than Dr James Bradley, Of Steeler football fame. Yes, he is the official head MD for the superbowl winning team...beacause of him, the steelers were able to walk onto that field. So what's eight weeks of Motrin?
James is talking up a storm. He is doing so well, yet still not quite up to age appropriate speech. But aI am just pleased with the amazing progress he has made.
Elle is suppossedly having trouble in school (at least accordingh to her teachers). But I don't belive it, as when I work with hershe knows everything the teacher has just told me she doesn't know. I think perhaps she wants attention.
So that's the update...Been busy, not all good, but mostly good. Hope all is well by you all...thanks for hanging in and waiting fo rupadtes...I will try to post sooner then before...but Im not promising anything!
I have been so busy these last few weeks that time has slipped though my fingers and before I know it I have failed to update all of you once again. So I am taking a few minutes now to tell the tales of the last few weeks.
I have jumped into school and been very busy trying to juggle house, family and school. So far managing pretty well (thanks to my Hubby - BStrong). I managed to get A's on my first two exams...now I just have to keep them up. The battle if half won!
Kids are doing great. Peanut is pulling to stand without quing at the bathtub, gets up on her own everytime! Our PT had her baby, a baby girl ( she is such a doll) so we have a new PT filling in for us until Ms Julie gets back. The only problem is that Peanut knows the differance between the replacement and Julie..and is giving us a hard time and not working very well. OH, well. We will keep trying, but we may be given a bigger run for our money then we had anticipated.
I can't believe Peanut will be two in a couple of months! Where has the time gone?
I have kept our family busy by falling up my stairs and hurting my knee. Yes, I had a momentary lapse in memory as to how to walk UP the steps. I apparently did a ggod job on it, as it took me three weeks to get my butt in to see my orthopaedic surgoen, and when I finally went he tells me I split a muscle in my leg (Vastus Lateralis, it's one of the quadracept muscles). Basically I bought myself a ticket to the OR, but oh, by the way, they have no room on their schedule for almost eight weeks! Diod I mention I can't walk? I'm in pain? I'll just keep taking my Motrin and try not to do too much (Yeah right...mother of three here!?). The funny thing is, is that if g-d forbid it was one of my kids I would not hear of being pushed off for that long. I'd be insisting on surgery ASAP. I however, look at it as if I want to be worked on by the best of the best, I wait. The surgeon IO use is none other than Dr James Bradley, Of Steeler football fame. Yes, he is the official head MD for the superbowl winning team...beacause of him, the steelers were able to walk onto that field. So what's eight weeks of Motrin?
James is talking up a storm. He is doing so well, yet still not quite up to age appropriate speech. But aI am just pleased with the amazing progress he has made.
Elle is suppossedly having trouble in school (at least accordingh to her teachers). But I don't belive it, as when I work with hershe knows everything the teacher has just told me she doesn't know. I think perhaps she wants attention.
So that's the update...Been busy, not all good, but mostly good. Hope all is well by you all...thanks for hanging in and waiting fo rupadtes...I will try to post sooner then before...but Im not promising anything!
Monday, February 06, 2006
Steelers Get the Job Done 21-10!!!!!
Ok, I admit I am not that into football, but this season I have developed an appreciation for the finer things in life. At least the last few games have caught my interst. But let me tell you, last night was awesome! I can't believe we won the super bowl (did I mention I was born and raised in Pittsburgh?)
My kids had a blast as they got to stay up later and watch part of the game with their Steeler attire on over their pj's.
The weird thing is that I am older then Roethlisberger, by a few years, and the guy played and won in the super bowl...dream big, and it can be done!
Have a great day...I know we all will here in the great city of Pittsburgh.
My kids had a blast as they got to stay up later and watch part of the game with their Steeler attire on over their pj's.
The weird thing is that I am older then Roethlisberger, by a few years, and the guy played and won in the super bowl...dream big, and it can be done!
Have a great day...I know we all will here in the great city of Pittsburgh.
Monday, January 30, 2006
Tagged - Twice!
You know you are out of it when you get tagged for a Meme, not once, but twice. So, to redeem myself with those who have tagged me, I am combining two different meme's, one was a 4 meme, the other was a 7 meme, so here goes nothing:
Four jobs I have had:
1. Lactation consultant
2. High school math teacher
3. Human resources assistant
4. Legal assistant
(5 Manager of Grand Central Station ie my house with all the therapists, Doctors appointments)
Four Favorite Foods:
1. Mint chocolate chip Ice cream ( Baskin Robbins)
2. Chocolate
3. Steak
4. Mangos
Four TV Shows I Love to Watch:
1. Greys Anatomy
2. Desperate Housewives
3. Good Eats
4. Unwrapped
Four Places I'd rather be:
1. Hawaii
2. Florida
3. England
4. Venezuela ( Don't ask)
Seven Movies I love:
1. Being John Malkovich
2. Much Ado About Nothing
3. Meet Me in St Louis
4. Singing in the Rain
5. Die Hard ( all three)
6. Girls Just Want to Have Fun
7. Bill Engvall: Here's Your Sign
Seven Places I have Been on Vacation:
1. Florida
2. Delaware
3. Puerto Rico
4. St Louis
5. Connecticut
6. New York
7. Detriot
Seven Books I love:
1. Grapes of Wrath by John Steinbeck
2. Trading up by Candace Bushnell
3. Great Expectations by Charles Dickens
4. Selected Poems of Alfred Lord Tennyson
5. The Odd Women by George Gissing
6. Sun Also Rises by Ernest Hemmingway
7. In Dubious Battle by John Steinbeck
Seven Things I Say
1. What.....
2. Benefit of the doubt
3. Whatever
4. Awesome
5. If I have to tell you one more time.....
6. Such is life....
7. Thank God
8. Can you say Antidisestablishmentarianism?
Seven things that attract me to people...
1. Compassion
2. Interests
3. Personality
4. Thoughfulness
5. Intelligance
6. Attitude
7. Sense of humor
Seven things I can't do:
1. sing
2. drive a stick shift
3. ski
4. tread water
5. eat raw meat or fish
6. pass up a good sale
7. Stay up late ( I need my Sleep)
I will not tag anyone, for I fear I am the last one in the planet to have not responded to being tagged yet. Have a great week everyone!
Four jobs I have had:
1. Lactation consultant
2. High school math teacher
3. Human resources assistant
4. Legal assistant
(5 Manager of Grand Central Station ie my house with all the therapists, Doctors appointments)
Four Favorite Foods:
1. Mint chocolate chip Ice cream ( Baskin Robbins)
2. Chocolate
3. Steak
4. Mangos
Four TV Shows I Love to Watch:
1. Greys Anatomy
2. Desperate Housewives
3. Good Eats
4. Unwrapped
Four Places I'd rather be:
1. Hawaii
2. Florida
3. England
4. Venezuela ( Don't ask)
Seven Movies I love:
1. Being John Malkovich
2. Much Ado About Nothing
3. Meet Me in St Louis
4. Singing in the Rain
5. Die Hard ( all three)
6. Girls Just Want to Have Fun
7. Bill Engvall: Here's Your Sign
Seven Places I have Been on Vacation:
1. Florida
2. Delaware
3. Puerto Rico
4. St Louis
5. Connecticut
6. New York
7. Detriot
Seven Books I love:
1. Grapes of Wrath by John Steinbeck
2. Trading up by Candace Bushnell
3. Great Expectations by Charles Dickens
4. Selected Poems of Alfred Lord Tennyson
5. The Odd Women by George Gissing
6. Sun Also Rises by Ernest Hemmingway
7. In Dubious Battle by John Steinbeck
Seven Things I Say
1. What.....
2. Benefit of the doubt
3. Whatever
4. Awesome
5. If I have to tell you one more time.....
6. Such is life....
7. Thank God
8. Can you say Antidisestablishmentarianism?
Seven things that attract me to people...
1. Compassion
2. Interests
3. Personality
4. Thoughfulness
5. Intelligance
6. Attitude
7. Sense of humor
Seven things I can't do:
1. sing
2. drive a stick shift
3. ski
4. tread water
5. eat raw meat or fish
6. pass up a good sale
7. Stay up late ( I need my Sleep)
I will not tag anyone, for I fear I am the last one in the planet to have not responded to being tagged yet. Have a great week everyone!
Friday, January 20, 2006
Old Friends, New Faces
Well, this week went a bit more smoothly, then last week. It was back to same old for the most part. Peanut was still under the weather the begining of the week, but is feeling much better now. In fact she had a great week in therapy. She attempted to walk down the steps...don't worry, the therapist was holding her hands so she wouldn't fall. She was not scared, or worried at all, in fact Peanut wanted to walk down vs sit on her bum to go down. Now if only she'd do it on her own...in due time! Peanut also has shown her understanding of up, down, on, off, under and in and out. We have been using Weebles, to have her hold them up (she says "BUP" Yay!) or put them down. She also puts them into contaioners and takes them out with verbal cuing only! Cool!
Today was Tube day for my Elle. we went into to have tubes put back into her ears, and she did great! What a trooper! She also was famous, because we ran into quite a few of Peanuts Hospital friends. The nurses and Np's and MD's who know us from her surgeries. It was nice for Elle to have that recognition...plus I made sure to tell everyone what a great big sissy she is and how she taught her a new game. Yes, Peanut has another new trick, she runs away in tag! YOu roll a ball or toy to her, she grabs it and turns, running ( ie butt scooting really fast) away from you. She stops and looks over her shoulder to make sure you are trying to catch her and then scoots off aagain! It is so cute! Elle was excited to tell all about this new trick. Elle was a little worried about the surgery, but we played Uno and chit chatted with the staff, and before you knew it the procedure was done. Elle asked when she was going to get her tubes in! She didn't realize they had done it already.
We had our favorite Anesthesiologist ( Dr GReenberg) He is so Awsome! Good guy, and great md. Glad it is over, as I did not sleep well last night. Even though I know the procedure is not a big deak, it is still my child going under anesthesia....
Here's hoping for a great weekend with my kiddos,
Today was Tube day for my Elle. we went into to have tubes put back into her ears, and she did great! What a trooper! She also was famous, because we ran into quite a few of Peanuts Hospital friends. The nurses and Np's and MD's who know us from her surgeries. It was nice for Elle to have that recognition...plus I made sure to tell everyone what a great big sissy she is and how she taught her a new game. Yes, Peanut has another new trick, she runs away in tag! YOu roll a ball or toy to her, she grabs it and turns, running ( ie butt scooting really fast) away from you. She stops and looks over her shoulder to make sure you are trying to catch her and then scoots off aagain! It is so cute! Elle was excited to tell all about this new trick. Elle was a little worried about the surgery, but we played Uno and chit chatted with the staff, and before you knew it the procedure was done. Elle asked when she was going to get her tubes in! She didn't realize they had done it already.
We had our favorite Anesthesiologist ( Dr GReenberg) He is so Awsome! Good guy, and great md. Glad it is over, as I did not sleep well last night. Even though I know the procedure is not a big deak, it is still my child going under anesthesia....
Here's hoping for a great weekend with my kiddos,
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